“Hearing about POTS felt equally scary and hopeful.”

Being strong will always take you places.

Coach Kait

I took a good look at my personal journey with POTS and purposefully chose individuals in different chapters of my life to help tell the story.


These individuals helped me to navigate what I didn’t know at the time was living POTS Strong.

Meet a childhood friend and classmate Amanda.

What was it like to have a classmate/teammate with POTS?
Having a classmate and teammate with POTS certainly opened my eyes to a world that I knew nothing about. Since then, I have encountered several individuals with a POTS diagnosis, and I feel grateful in a way for the experience I had being so close to someone who experienced it. It feels weird to say “grateful” but hear me out:
I think what I mean is that we were really WITH her in the mystery of the syndrome, from the early days when all sorts of things were happening with her body. And because of her generosity in sharing the ins and outs of the experience with us, we really got a good picture of what it meant for a person to experience it.


When you first heard the term POTS, what were your thoughts?
I remember feeling eager to learn about POTS, because of what my friend was going through. I remember wanting to be helpful when it came to day-to-day coping but feeling like I could not help in any real way when it came to healing, because of my lack of knowledge. That being said, Kait was generous in sharing what she was experiencing and learning, in real time—  I remember feeling like new information was coming so frequently! She was learning more about her body, what she could tolerate and what she could not, and what she needed to cope on a day to day basis (for example, I distinctly remember: ample time for transitions, and lots of salt!)

Seeing Kait now, compared to where she was during the years 2005-2008. What are your thoughts?
Seeing Kait today, it is clear to me how hopeful and determined she was (and is!) to live a “normal” life and not let POTS take away from living a full and fulfilled life. It is inspiring! It is not often that you encounter someone who has faced a diagnosis like Kait did, in her teens, who didn’t let it define her, but instead used it to propel her strength and determination, not only for her own health but for the health of others, too. I am inspired by her vision to be inclusive and to share knowledge. Truly, to know what she has been through, and to see her now, it is clear to see the grit she embodies!